Monday, July 18, 2011

Stuck at the Fair

Living with these illnesses can be like being stuck at a bad fair.  We want to get off of the wild rides, and we are tired of playing the games.  The smell of the food makes us sick, and the music hurts our ears.  We want to get out, but we can’t find the exit and get trampled by the crowds. 

The ups and downs of the severity of our symptoms is a roller coaster.  We are strapped in our seats and we just want to get off the ride.  Days turn into weeks, weeks into months, and months into years, yet we never get used to the ride and still want off.

Trying to judge our limits is like trying to hit a moving target in one of those fair games.  We keep playing and thinking we surely have it this time, only to find out that we overdid it again, and missed the mark. Symptoms change frequently and it may feel like we are constantly playing a game of Whack-a-Mole.  Every time we get one symptom under control, another one or two pop up.

Suddenly we find ourselves in the House of Mirrors, lost in fibro fog.  It is hard to find our way out and everything seems distorted.

We may get stuck on the Tilt-a-Whirl, spinning around and around.  But the dizziness doesn’t subside after we get off.  Minutes go by and still the world is spinning.  For those of us with orthostatic intolerance, it may feel like we live on the Tilt-a-Whirl.

Somehow we end up in the side show acts and find ourselves lying on a beds of nails, only it really is as painful as it looks.  And we find ourselves with swords down our throats, which are already sore and raw.  The pain pierces through us.  Maybe we find ourselves the unwilling assistant to the magician who puts us in a box and puts swords through it.  Unfortunately, we feel each blade as it painfully penetrates us.

It is like we are trapped on the ferris wheel and every time it goes to the bottom, we think we may finally get off. Instead it keeps going, like the many hopes that we may finally get better...finally find a treatment that works...finally get to live our lives.

Do you have a metaphor that you like to use for your illness or symptoms?


  1. May I use this on my blog, it really is good! You're welcome to use anything from my blog, as the goal is th get the word out to the public and the docs.
    the blog is at


    Dr. Gene Martin

  2. Thanks! And yes, you are welcome to use it on your blog.