Saturday, September 15, 2012

30 Things Meme

Since it is National Invisible Chronic Illness Awareness Week, I have filled out the 30 Things Meme.

30 Things About My Invisible Illness You May Not Know

  1. The illness I live with is: ME/CFS, Fibro, POTS…just to name a few
  2. I was diagnosed with it in the year:  2002
  3. But I had symptoms since:  1998 (age 13)
  4. The biggest adjustment I’ve had to make is:  having to ration the little energy I have.
  5. Most people assume:  my illness is something I’ll “get over” (I wish!)
  6. The hardest part about mornings is:  waking up
  7. My favorite medical TV show is:  Grey’s Anatomy
  8. A gadget I couldn’t live without is:  my laptop (my connection to the outside world)
  9. The hardest part about nights is:  not even being able to escape my exhaustion in my dreams
  10. Each day I take 14 pills & vitamins. 
  11. Regarding alternative treatments I:  stick with those recommended by a doctor I trust and have found a few helpful ones.
  12. If I had to choose between an invisible illness or visible I would choose:  visible…of course the grass is always greener, so I might have answered differently if I had a visible illness.
  13. Regarding working and career:  I wish I was well enough to have really started a career.
  14. People would be surprised to know:  how many hours a day I can sleep.
  15. The hardest thing to accept about my new reality has been:  my limits
  16. Something I never thought I could do with my illness that I did was:  graduate college
  17. The commercials about my illness:  are nonexistent 
  18. Something I really miss doing since I was diagnosed is:  being physically active.  I used to be very active and loved going on hikes and long walks to explore new places.
  19. It was really hard to have to give up:  gluten
  20. A new hobby I have taken up since my diagnosis is:  blogging
  21. If I could have one day of feeling normal again I would:  spend the day having fun with my nieces and nephews
  22. My illness has taught me:  to appreciate the little things
  23. Want to know a secret? One thing people say that gets under my skin is:  you really need to exercise/get out more (my body thinks showering is running a marathon—so I think that is enough “exercise” at this point, and as far as going out, I am probably still recovering from my last doctor’s appointment)
  24. But I love it when people:  actually try to learn about my illnesses
  25. My favorite motto, scripture, quote that gets me through tough times is:  “When you get into a tight place and everything goes against you, till it seems as though you could not hang on a minute longer, never give up then, for that is just the place and time that the tide will turn.” – Harriet Beecher Stowe
  26. When someone is diagnosed I’d like to tell them:  You are not alone.
  27. Something that has surprised me about living with an illness is:  how much energy things like taking a shower and brushing teeth take.
  28. The nicest thing someone did for me when I wasn’t feeling well was:  I would have to say a tie between making/giving me gluten free baked goods and cleaning for me.
  29. I’m involved with Invisible Illness Week because:  I want to raise awareness.
  30. The fact that you read this list makes me feel:  happy